Kathryn Ysabel S
St. Paul University Iloilo, College of Nursing, Iloilo City, Philippines
Abstract Title:
My Life With Chronic Kidney Disease: Stories of Spirituality and Resilience
Biography:
Sai Denise T. Train is a third-year nursing student at St. Paul University Iloilo. As a student
researcher, her current work focuses on the lived experiences of individuals with chronic kidney
disease, specifically examining how spirituality and resilience influence their journeys. Through
her studies and research efforts, Sai Denise aspires to contribute to holistic patient care and
advance nursing practices that support both the psychological and spiritual well-being of
individuals facing chronic illnesses.
Research Interests:
Chronic kidney disease (CKD) is a life-altering condition that affects not only the physical health
of individuals but also their emotional, social, financial and spiritual well-being. This study
explored the lived stories of persons with CKD before diagnosis, at the time of diagnosis, and
while undergoing hemodialysis using Connelly and Clandinin’s (2020) narrative inquiry
approach, anchored in Roy’s Adaptation Model (RAM). Five participants aged 24–30 who are
undergoing hemodialysis for over six months were purposely selected. Data were gathered
through in-depth interviews, and participants were presented chronologically to capture their
transitions, coping processes and adaptation throughout their illness journey. Findings revealed
that prior to diagnosis, participants often misunderstood their symptoms. Attributing them to
fatigue, stress or common illnesses. Upon diagnosis, participants experienced shock, fear,
emotional distress and uncertainty as they confronted the reality of a chronic and lifelong
condition. During hemodialysis, participants experienced persistent physical challenges such as
fatigue, weakness, dietary restriction, and treatment complications. Psychosocial struggles
including anxiety, altered self-image, emotional exhaustion, financial instability and dependence
on support systems were seen. Despite these challenges, participants gradually developed
resilience through acceptance, lifestyle adjustments, spirituality, emotional regulation, and
support from family, partners, peers, and healthcare providers. The study highlights the
adaptation to CKD is a continuous and multidimensional process influenced by both internal
coping mechanisms and external support systems. Findings emphasize the importance of holistic
and patient-centered interventions that address not only the physical aspects of CKD but also the
psychosocial, financial, and spiritual needs of individuals undergoing hemodialysis.
Keywords: Chronic kidney disease, hemodialysis, coping, spirituality, resilience
